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Program

Target Audience
The conference is designed for nurses and other health care professionals interested in recent developments in the field of pediatric endocrinology nursing, including pediatric diabetes.

Program Goals
It is PENS’ goal to promote high quality endocrinology nursing practice through this educational offering. Conference participants receive the latest information in basic to advanced practice, experience and research as demonstrated by pediatric endocrinologists and pediatric endocrinology nurses.
DM= Diabetes Mellitus
ENDO= Endocrinology
ADV= Advanced
BAS = Basic

Program Objectives​
  • Develop new skills to improve educational and patient outcomes
  • Provide educational opportunities in pediatric endocrinology for nurses and others with expertise in the area
  • Promote the pursuit of nursing practice and research through a research presentation and poster session
  • Provide educational opportunities in the management and treatment of selected endocrine disorders
  • Provide direction for understanding health care changes
  • Objectives for each session are listed within the schedule
PENS Conference Planning Committee
Meg Keil, PhD, CRNP, Chair
Victoria J. Costa, RN
Rebecca Crespi, BA, RN, MSN, CPNP, CDE
Kelly D. DeGrote, RN, BSN
Sheri L. Luke, FNP-C
Catherine P. Metzinger, AAS, RN, CDE
Jane Torkelson, MS, RN
Maryann Johnson, BSN, RN, Board Liaison​

Accreditation
Application has been made to the Greater Kansas City Chapter of the American Society for Pain Management Nursing, an approved provider of continuing nursing education by the Kansas State Board of Nursing. Kansas State Board of Nursing provider number LT0279-0412. 
 
The above application will include approval of Advanced Pharmacology contact hours for APNs. To receive contact hours for this conference, participants must complete the online evaluation.​​​

Networking
The opportunity to develop and continue relationships with your colleagues through networking is one of the key benefits of attending the PENS Conference. Networking offers many tangible benefits to conference participants, including, but not limited to, validating your experience in providing nursing care and developing a better understanding of your practice and your role in care delivery by learning from others who are dealing with similar circumstances, solving the same problems and confronting the same issues. Take advantage of this national gathering of pediatric endocrinology nurses to learn more about national issues and trends.​​

Po​sters
PENS is providing a venue for meeting attendees to view and discuss participants’ poster presentations on Friday evening. Visit with the poster presenters and learn about current research that will affect your clinical practice!



​​Wednesday, April 26, ​2017
Time ​Presentation/Event Prese​nter(s)​
​8:00 a.m. - 5:15 p.m.
7.5 Contact Hours​*
​Pre-Conference Workshop:
Growth Matters​ 
Click here for more information
​Unrestricted education grant from Novo Nordisk, Inc. 
  • Recognize and discuss basic components of the pediatric endocrine nurse's role as it pertains to growth and growth disorders.
  • Discuss assessment and diagnosis of growth and growth disorders.
  • Describe evaluation, treatment and follow-up treatment of growth disorders. 
​​​
Becky Thompson, BSN, RN, CDE
Terri Lipman, PhD, CRNP, FAAN
Kathryn Clark, MS, CS-BC, NP​
Mary S. Burr, DNP, CPNP-PC
Maureen Dever, MSN, CRNP, PPCNP-BC, CDE
Maryann Johnson, BSN, RN​
4:30 p.m. - 5:30 p.m. ​New Member/First Time Attendee Orientation & Past Presidents Reception
                                                                  Sponsored by​ 
5:30 p.m. - 7:30 p.m. ​Welcome Reception in Exhibit Hall
                                                                 Sponsored by 

Thursday, April 27, 2017​​​
Time Presentation​/Event Presenter(s)
​8:00 a.m. - 9:00 a.m.
1.2 Contact Hours*
​Leadership Breakfast:
                                                                  Sponsored by 
Surviving and Thriving in a High Change Environment
  • Explain the role that both anticipation and understanding play in how well people cope with change.
  • Discuss several new trends affecting business and healthcare in the US and extrapolate the effect these trends may have on you and your work environment.
  • Describe common reactions to change. ​

​Donna Godfrey, MS
9:00 a.m. - 10:15 a.m.
1.5 Contact Hours*
​General Session 1:
Social Determinants of Health: Impact on Children with Endocrine Disorders

  • Define social determinants of health.
  • Explain why addressing the role of social determinants of health is important.
  • Discuss the role of the pediatric endocrinology nurse practitioner in this process.
Terri Lipman, PhD, CRNP, FAAN
10:15 a.m. - 10:30 a.m. ​Refreshment Break in Exhibit Hall
10:30 a.m. - 11:30 a.m.
1.2 Contact Hours*
​General Session 2: 
Research Oral Presentations
  1. Clinical Needs and Desires of Patients and Families Affected by Sex Chromosome Variations: Addressing Patient-Centered Care 
  2. Pediatric Diabetes Educators’ Use of Evidence Based Health Literacy Communication Techniques
  3. A Nursing Perspective: Best Practices for Pubertal Suppression for Individuals with Central Precocious Puberty and Transgender  ​

Amy Blumling, BSN
Carol Howe, PhD, RN, CDE
Nicole Kirouac, RN, BN​
​11:30 a.m. - 12:30 p.m.
1.2 Contact Hours*
​General Session 3:
The Future of Growth Hormone Therapy
  • Describe normal growth hormone structure and metabolism.
  • Explain the mechanisms of prolonging growth hormone action.
  • Discuss long-acting growth hormone preparations currently in development.
​Bradley Miller, MD, PhD
12:30 p.m. - 2:00 p.m. ​Lunch with Exhibitors
​2:00 p.m. - 3:00 p.m.
1.2 Contact Hours*
​Concurrent Session 1:
​1A (ENDO/ADV) What Comes Under the DSD Umbrella?​

  • Define Disorders of Sex Development (DSD).
  • Describe in detail the principle DSD conditions.
  • Explain the role of the Nurse Specialist in caring for a child with a DSD.
Kate Davies, RN (Child), Dip HE, BSc (Hons), MSc, NMP
​1B (DM/ADV)  Demystifying Maturity Onset Diabetes of the Young (MODY)
  • Discuss the major characteristics of MODY and list the 3 most common types.
  • Identify 3 patient features that may be suspicious for a diagnosis of MODY.
  • Analyze case studies of children & teens to determine if MODY testing is indicated.​
​Kristine Welsh, RN, MSN, CPNP
​1C (ENDO/BAS) Growth Hormone Guidelines Roundtable
  • Review new Pediatric Endocrine Society (PES) guidelines for GH and IGF1 treatment for children and adolescents.
  • Identify implications for clinical management of patients related to new PES guidelines.
  • Discuss challenges related to implementation of patients related to new PES guidelines.
  • Share ideas and suggestions to facilitate successful implementation of new PES guidelines.
Chair:
TBD

Panelists:
Mary S. Burr, DNP, CPNP-PC
Catherine P. Metzinger, AAS, RN, CDE 
Bradley Miller, MD, PhD​
​3:00 p.m. - 3:30 p.m. Refreshment ​Break in Exhibit Hall
3:30 p.m. - 4:30 p.m.
1.2 Contact Hours*
​Concurrent Session 2:
​2A (ENDO/ADV) Personalized Therapy in Children with Congenital Adrenal Hyperplasia (CAH): The Role of Cortisol Pharmacokinetics and Adrenal Steroid Pharmacodynamic Responses to Hydrocortisone Treatment.

  • Describe the pathophysiology of CAH and its effect on growth and pubertal development.
  • Explain the inter-relationships among cortisol, 17OHP and D4A exposures in the healthcare management of children.
  • Discuss new ways of drug delivery and adrenal steroid monitoring.
Kyriakie Sarafoglou, MD
​2B (DM/BAS) Celiac Disease: The Who, When, and How of Screening Children Seen in Endocrinology
  • Describe the pathogenesis of celiac disease and the relationship to endocrine disorders.
  • Apply current evidence based recommendations to screening children with endocrine conditions for celiac disease with emphasis on children with diabetes.
  • Interpret celiac screening diagnostic study results.
Marianne Buzby, MSN, CPNP
​2C (ALL/ADV) DIY Research 2017: How To’s for Abstract Writing and Poster Making
  • Describe the four PENS abstract submission types.
  • Construct a draft of an abstract.
  • Describe guidelines for creating posters.
  • Demonstrate formatting for poster making using Power Point.
​Carol Howe, PhD, RN, CDE
Sharron Close, PhD, MS, CPNP-PC
4:30 p.m. - 5:30 p.m.
1.2 Contact Hours*
​Concurrent Session 3:

3A ​(ENDO/BAS) Feminization of Girls with Turner Syndrome (TS): Much to Consider
  • Explain ovarian function in patients with TS.
  • Discuss the clinical assessment and diagnostic evaluation of ovarian function in patients with TS.
  • Describe the treatment and intervention for primary ovarian failure.
​Denise Gruccio-Paolucci, MSN, CRNP
​3B (DM/ADV)  Eating Disorder (ED) and Diabetes: Tears, Missed Testing, High A1c - A Closer Look at the Signs
  • Describe basic physiology in diabetes (type 1 and type 2).
  • Explain eating disorders by type, including symptoms, signs for early detection, treatment.
  • Analyze case studies in individuals with eating disorders in the diabetes population.
Shari Liesch, MSN, APNP, CDE

​3C (ADV/ADV) Congenital Lipodystrophy: A Case Presentation
  • Identify clinical features of congenital generalized lipodystrophy.
  • Explain complications of congenital generalized lipodystrophy.
  • Describe treatment options for congenital generalized lipodystrophy.
Lisa Guerra, BSN, RN, CPN
Amelia Vinson, RN    

6:00 p.m. - 7:30 p.m.
1.8 Contact Hours*
​Poster Reception​
                                                                  Sponsored by 

7:30 p.m. - 10:00 p.m. ​Evening Event
​Sponsored by
Friday April 28, 2017
​​Time Presentation​/Event​ Presenter(s)
8:00 a.m. - 9:00 a.m. Awards Breakfast​
                                                                         Sponsored by 
9:00 a.m. - 10:00 a.m.
1.2 Contact Hours*
​KEYNOTE:
Grit Arises in the Darkest Places: How American World War II Nurses Survived Battle and Prison Camp 

  • Identify key concepts of resiliency through Casita Model of resiliency.
  • Analyze methods of resiliency support within the constraints of nursing duties.
  • Explain resiliency building strategies and identify the process of resiliency as it relates to grit.
Mary Cronk Farrell
10:00 a.m. - 10:15 a.m. Refreshment Break
10:15 a.m. - 11:15 a.m.
1.2 Contact Hours*
​General Session 4:
SGA and Adult Consequences
  • Explain the definition of SGA.
  • Identify morbidity and mortality associated with SGA.
  • Discuss the role of growth hormone in management of SGA.

​Robert Rapaport, MD
11:15 a.m. - 12:15 p.m.
1.2 Contact Hours*
Concurrent Session 4​:
​4A:  (ENDO/ADV) Bisphosphonate: Myths and Messages 
  • Identify the conditions which are treated by bisphosphonates in children.
  • Discuss the mechanisms of action of bisphosphonates and expected benefits.
  • Discuss the potential side effects of bisphosphonates and their use in special circumstances. 
Leanne Ward, MD 
​4B:  (DM/ADV) Beta Cell Replacement Therapy in Diabetes: Islet Cell Transplants for Type 1 Diabetes and for Children Undergoing Pancreatectomy
  • Discuss the reasons for islet transplant.
  • Describe the rationale for and management of pancreatectomy with islet transplants for children.
  • Explain common islet transplant outcomes.
​Melena Bellin, MD
​4C: (ENDO/BAS) Using Endocrine Disorders to Understand Genetics

  • Distinguish between genotype and phenotype.
  • Identify differences in autosomal recessive/ autosomal dominant/ de novo mutations.
  • Discuss details of unusual genetics case studies.
​​Carol Van Ryzin, RN, MS, CPNP
​12:15 p.m. - 1:30 p.m. ​Membership Meeting/Lunch
1:30 p.m. - 3:00 p.m.
1.8 Contact Hours*
Concurrent Session 5​:
​5A:  (ENDO/ADV) Endocrine Advanced Practice Case Studies

  1. A Genetic Disorder Causing Ketotic Hypoglycemia
  2. Hypophosphatasia, to Treat or Not to Treat
  3. Klinefelter's Syndrome: A Near Miss in a Boy with Congenital Hypothyroidism​



  1. Linda Steinkrauss, RN, MSN, CPNP​

  2. Mako Sather, RN, MSN, CPNP

  3. Mandi Cafasso, RN, DNP, CPNP
​5B:  (DM/ADV) Diabetes Advanced Practice Case Studies

  1. Neonatal Diabetes: The Rewards and Challenges
  2. Antibody Negative Diabetes - A Case of MODY
  3. Strategies to Improve Diabetes Management in Type 1 Teens​



  1. Heather McKnight-Menci, MSN, CRNP

  2. Rebecca Crespi, RN, MSN, CPNP, CDE

  3. Sheri Luke, MSN, FNP-C; Lisa Richards, MSN, CPNP-PC

​5C:  (ALL/BAS) Reflecting Resiliency in a Cracked Mirror: Useful Tools for Building Grit

  • Appraise personal skills of resiliency and discuss each as a building block in resiliency support.
  • Examine risk factors and decision points in the process of exercising resiliency.
Shari Liesch, MSN, APNP, CDE
Mary Cronk Farrell
3:00 p.m. - 3:30 p.m. ​Refreshment Break
                                                                ​Sponsored by
​ 
3:30 p.m. - 4:30 p.m.
1.2 Contact Hours*
​Concurrent Session 6:
​6A: (ALL/ADV) Billing Basics: Understanding How to Bill for the Care You Provide
  • Differentiate direct billing, split/shared billing, and incident-to billing models based on the components of each model.
  • Describe documentation requirements for a billable encounter when collaborating with other providers.
  • Apply lessons learned to maximize opportunities to bill for clinical care provided.
Marianne Buzby, MSN, CPNP
​6B:  (DM/BAS) Type 1 Year 1 (T1Y1): A Team Approach to Newly Diagnosed Type 1 Diabetes
  • Implement two care strategies into practice to improve management of the pediatric patient with new onset diabetes.
  • Restructure team roles with a focus on education in order to lower average hemoglobin A1c values.
  • Describe the barriers and solutions when applying practice change. 
​​Robin LeBoeuf, CRNP, M​SN, PNP-AC
​6C:  (ALL/BAS) Writing for Publication
  • Discuss the knowledge and skills necessary for writing for newsletters, journals, and other nursing related publications.
  • Identify a potential topic for publication based on your area of clinical expertise.
  • Identify potential organizational resources within the work setting that can be accessed to achieve your publication goal.
Cecily Betz, PhD, RN, FA​AN
Linda Steinkrauss, RN, MSN, CPNP​
​​
5:00 p.m. - 6:00 p.m. Committee Meetings​
​7:00 p.m. - 10:00 p.m. Evening Event
Sponsored by ​​
Saturday April 29, 2017
​Time Presentation/Event​ ​Presenter(s)
​8:00 a.m. - 9:00 a.m.

​KEYNOTE:
Let Laughter Lower Your Blood Sugar!
  • Describe beneficial physiological and psychological effects of laughter on body, mind and spirit.
  • List the four theories of humor.
  • Demonstrate laughter therapy techniques for stress reduction and disease management.
​Trisha Porretti, RN, BSN, CDE
9:00 a.m. - 10:00 a.m.
1.2 Contact Hours*
​General Session 5:
Endocrine Lab Testing: Tips, Tricks and Traps
  • Recognize when antibody interference could be affecting lab results and how to evaluate/investigate it appropriately.
  • Explain why 2 immunoassays with the same name can give very different results.
  • Discuss when DNA diagnostic testing may not be as definitive as you might expect.
​Jon M. Nakamoto, MD
10:00 a.m. - 10:15 a.m.Refreshment Break​
10:15 a.m. - 10:30 a.m. ​Passing of the Presidential Gavel
​10:30 a.m. - 11:30 a.m.
1.2 Contact Hours*
​General Session 6:
Prader-Willi Syndrome - Emerging Therapies

  • Describe the genetics and hormonal profile of Prader-Willi Syndrome.
  • Outline the most common health and behavior challenges of this syndrome.
  • Discuss current therapies and emerging research.
​Kathyrn Clark, MSN, PNP
11:30 a.m. - 12:30 p.m.
1.2 Contact Hours*
​General Session 7:
Evaluation and Management of Hyperlipidemia in Children

  • Determine when and what cholesterol and related testing is indicated in children.
  • Assess practical dietary management of hyperlipidemia.
  • Determine when pharmacological treatment is warranted. ​
Douglas Rogers, MD
​12:30 p.m. ​Conference Concludes
* Subject to change based upon approval 
Total number of contact hours applied for is 28.2 (20.7 for the regular conference plus 7.5 for the pre-conference workshop)