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Program

Target Audience
The conference is designed for nurses and other health care professionals interested in recent developments in the field of pediatric endocrinology nursing, including pediatric diabetes.

Program Goals
It is PENS’ goal to promote high quality endocrinology nursing practice through this educational offering. Conference participants receive the latest information in basic to advanced practice, experience and research as demonstrated by pediatric endocrinologists and pediatric endocrinology nurses.
Program Objectives​
  • Develop new skills to improve educational and patient outcomes
  • Provide educational opportunities in pediatric endocrinology for nurses and others with expertise in the area
  • Promote the pursuit of nursing practice and research through a research presentation and poster session
  • Provide educational opportunities in the management and treatment of selected endocrine disorders
  • Provide direction for understanding health care changes
PENS Conference Planning Committee
Christin Morell, RN, BSN, Chair
Jennifer Anisko, CRNP, CDE, Vice Chair
Sheri Luke, MSN, FNP-C
Leigh Pughe, RN, MS, CPNP
Sarah Bottomley, DNP, APRN, CPNP-PC
Melissa Rearson, MSN, CRNP
Rebecca Crespi, BA, RN, MSN, CPNP, CDCES, Board Liaison‎

Accreditation
This nursing continuing professional development activity was approved by the Ohio Nurses ‎Association, an accredited approver by the American Nurses Credentialing Center’s ‎Commission on Accreditation. (OBN-001-91)‎

Faculty Disclosures
All PENS 2022 faculty members have indicated they do not have a conflict of interest to report.‎

Successful Program Completion
In order to receive the CNE for these sessions you must view the presentations and complete ‎the evaluation no later than July 23, 2022.‎

Networking
The opportunity to develop and continue relationships with your colleagues through networking is one of the key benefits of attending the PENS Conference. Networking offers many tangible benefits to conference participants, including, but not limited to, validating your experience in providing nursing care and developing a better understanding of your practice and your role in care delivery by learning from others who are dealing with similar circumstances, solving the same problems and confronting the same issues. Take advantage of this national gathering of pediatric endocrinology nurses to learn more about national issues and trends.​​

Commercial Support

PENS has received commercial support from the following organizations for the 2022 PENS National Conference.

  • Abbvie
  • Alexion
  • Ascendis
  • Azurity Pharmaceuticals
  • BioMarin
  • Endo Pharmaceuticals
  • Eton Pharmaceuticals
  • Novo Nordisk
  • Tolmar

Registration is closed. You can still register onsite by using the form below:




​​Wednesday, May 18, 2022
Time ​Presentation/Event Prese​nter(s)
​4:30 p.m. - 5:3​0 p.​m.
New Member/First Time Attendee Orientation & Past Presidents ‎Reception
​​

5:30 p.m. - 7:3​0 p.​m. Welcome Reception in Exhibit Hall                              ‎
5:45 p.m. - 7:15 p.m. ​Product Theaters



Thursday, May 19, 2022​​​​​​
Time Presentation​/Event Presenter(s)
​7:00 a.m. - 8:00 a.m.Breakfast Symposium Provided by BioMarin
The Latest Advancements in Achondroplasia
Join this educational symposium to learn about the latest advancements in achondroplasia, the most common form of disproportionate short
stature. You will learn about the latest data and developments, available resources and support for clinics and families, and methods for measuring growth and monitoring the health of children with achondroplasia. An audience Q&A will follow.

Jane Torkelson, RN, MS, Care Coordinator, University of Minnesota Physicians; Loritta Manai, BSN, RN, CCRP, Nurse Manager, The Lundquist Institute at Harbor-UCLA; Dorna Chu, PharmD, Associate Medical Director,
BioMarin Pharmaceutical Inc.; Christina McFadden, Clinical Coordinator,
BioMarin Pharmaceutical Inc.

8:00 a.m. - 8:15 a.m.Welcome & Opening RemarksRebecca Crespi, BA, RN, MSN, CPNP, ‎CDCES, PENS President‎
​8:15 a.m. - 9:15 a.m.
1.0 Contact Hour*
Professional Development
Keynote Address
Connie Merritt is a National Keynote Specialist, Award-Winning Author, ‎and Horse Whisperer in Training. She speaks to people in healthcare who ‎crave the joy they once had in their work and life. She shows them how ‎to turn obstacles into opportunities and traumas into traction, so they ‎can move forward and...‎
  • Be more present (and pleasant) for their patients and co-‎workers.‎
  • Deal with difficult people and situations.‎
  • Set priorities and use wiser self-care.‎
  • Take initiative and take action.‎
  • Have hope and let go of what’s keeping them stuck.‎

​Connie Merritt, RN, BSN, PHN, ‎National Keynote Specialist, Award-‎Winning Author, Horse Whisperer in ‎Training
9:15 a.m. - 10:15 a.m.
1.0 Contact Hour*
Endocrine, Basic
Is There a Magic Pill?‎
The presenter will provide information about the many new medications ‎available for pediatric/adolescent weight management. There are many ‎medications that have the weight loss indication, but most patients want ‎a "magic pill". Pediatric obesity is continuing to increase and is going to ‎be part of the endocrine practice for the foreseeable future. What are ‎the options they may be able to prescribe to patients when combined ‎with lifestyle modifications?‎


Courtney Reints, DNP, ARNP, CPNP-‎PC, Pediatric Nurse Practitioner, Blank ‎Children’s Hospital – Pediatric ‎Endocrinology, Des Moines, IA
10:15 a.m. - 10:45 a.m. ​Refreshment Break in Exhibit Hall
Coffee, Tea, Water and Soft Drinks Provided 
​                                          
10:45 a.m. - 11:45 a.m.
1.0 Contact Hour*
Pharmacology, Advanced
Emerging Therapy Options for the Management of Congenital ‎Adrenal Hyperplasia
The presenter will review the current CAH therapies in use for pediatric ‎patients and discuss the new therapy options that are being studied for ‎use in the CAH population. She will provide an overview of ‎Hydrocortisone sprinkles, the Hydrocortisone emergency auto-injector in ‎development now, the CRF-1 antagonists which are currently being ‎studied in phase 2 and 3 trials and the use of pumps in CAH patients. This ‎presentation will be an introduction to novel treatment options for this ‎patient population and will include discussion/debate on the ‎usefulness/practicality of these therapies. The presentation will also ‎feature an interactive discussion regarding the management of CAH ‎throughout the phases of childhood and adolescence.‎


 

Leslie Pitts, CRNP, Pediatric Endocrine ‎Nurse Practitioner, Children’s of ‎Alabama, Pelham, AL
11:45 a.m. - 12:45 p.m.
1.0 Contact Hour*
Endocrine, Advanced
Long-Acting Growth Hormone: Latest Developments, Clinical ‎Usefulness and Future Considerations

Daily recombinant human growth hormone revolutionized the treatment ‎of growth hormone deficiency and has been the standard of care since ‎the 1980s.  However, the burden of daily injections and reduction in ‎treatment outcomes from nonadherence have prompted the ‎development of long-acting growth hormone analogs.  Currently, LAGH ‎analogs are marketed in Asia and just recently in the United States for ‎pediatric growth hormone deficiency.  This new era of growth hormone ‎treatment brings the potential of increased tolerability, therapeutic ‎flexibility and adherence.  However, the unphysiological nature and ‎differences in the technology used to prolong GH may also bring certain ‎challenges to dosing, monitoring and long-term safety.‎

Joshua H. Yang, MD, Chief of ‎Pediatric Endocrinology, Orlando ‎Health Arnold Palmer Hospital for ‎Children Endocrinology and Diabetes ‎Center, Orlando, FL‎
12:45 p.m. - 2:15 p.m. ​Lunch with Exhibitors & Product Theaters
Boxed Lunches Provided
12:50 p.m. - 2:10 p.m.
Product Theaters
2:15 p.m. - 3:15 p.m.
1.0 Contact Hour*
Endocrine/Diabetes, Advanced
Gender 101 and Endocrine Management of Medical Transition in Pediatrics
The goal of this session is to familiarize the audience with the basics of caring for children and adolescents who identify as transgender or gender non-conforming. By the end of the session, the audience will be able to describe specific terms used in gender care, discuss hormone medications used in medical transition, and apply knowledge learned through case-based discussion to improve care for transgender and gender non-conforming youth. 
Lisa Kenigsberg-Fechter, MD, Pediatric Endocrinologist, Broward Health, Coral Springs, FL
3:15 p.m. - 3:45 p.m.
Refreshment Break in Exhibit Hall

3:20 p.m. - 3:40 p.m.

Product Theater


3:45 p.m. - 4:45 p.m.
1.0 Contact Hour*

​Concurrent Session 1
Diabetes, Advanced
​‎1A. Diabetes Case Studies

Clinic Practice Models and Shared Appointments for High-Risk ‎Diabetics

The presenter will discuss some of the successes and failures ‎with different clinic models for their most vulnerable population. ‎They have faced several challenges with these models, and the ‎presenter will discuss what has worked and what failed. The ‎presentation will include open discussion with participants to ‎hear if they have had experiences with different clinic models. ‎


Disordered Eating in Adolescents with Type 1 Diabetes
The presenter will provide two case studies of adolescents who ‎present with disordered eating – one male and one female. ‎


Nikki Danis, MSN, RN, CPNP, Pediatric ‎Endocrine/Diabetes NP, Washington ‎University School of Medicine, St. ‎Louis, MO; Michelle Bockstruck, RN









Maureen Dever, MSN, CRNP, ‎CDCES, ‎Pediatric Nurse ‎Practitioner, ‎Endocrinology and ‎Diabetes, ‎Children’s Hospital of ‎Philadelphia, ‎Philadelphia, PA

Endocrine, Advanced
​‎1B. Endocrine Case Studies

Not Your Typical Case of Delayed Puberty: When Something ‎Doesn’t Smell Right
This case study presentation will review the diagnosis of ‎Kallmann Syndrome secondary to a pathogenic ANOS1 mutation.  ‎ANOS1 and other Kallmann Syndrome mutations cause a ‎fascinating phenomenon of impaired neuron migration that ‎occurs in utero – leading to both hypogonadotropic hypogonadism ‎from GnRH deficiency and anosmnia.  There will be discussion of ‎the genetic inheritance pattern of the ANOS1 mutation and how ‎BB and his family members may be impacted.  We will analyze ‎the possible comorbidities, which ones affect BB, and how to ‎evaluate and treat them.  There will be a focus on testosterone ‎replacement for boys with Kallmann syndrome, including various ‎methods for administration. Kallmann Syndrome is relatively ‎uncommon, and this presentation will take a detailed look at the ‎pathophysiology, treatment, and associated disorders.  During ‎this presentation, nurses will learn when to inquire about a ‎child’s sense of smell and when to consider genetic testing in the ‎setting of delayed puberty.‎

A Case of Primary Amenorrhea: What’s Missing
This will be an interactive discussion of primary amenorrhea, ‎differential diagnosis, and work up.‎




Linda Steinkrauss, MSN, CPNP, ‎Pediatric Nurse Practitioner, Nemours ‎Children’s Health, Wilmington, ‎Newark, NJ
























Cheryl Switzer, RN, MSN, CPNP, ‎CDCES, Nurse Practitioner, Cleveland ‎Clinic Children’s, Cleveland, OH

5:15 p.m. - 6:15 p.m.
1 Contact Hour*
Poster Reception
Sponsored by
 

​7:00 p.m. - 10:00 p.m. Evening Event Sponsored by Ascendis Pharma


Friday, May 20, 2022​
​​Time Presentation​/Event​ Presenter(s)
7:00 a.m. - 8:00 a.m. Breakfast Symposium  Provided by Alexion      
8:00 a.m. - 9:15 a.m.
1.25 Contact Hours*
Research
Research Oral Abstracts and Grant Presentations
  • Precocious Puberty in the Setting of Turners Syndrome - Expect the Unexpected

  • Racial Disparities in the Use of Technology in Children with Type 1 Diabetes: Focus on Parents’ Perspectives

Susan Davis, MSN (R), RN, APRN,
Pediatric Endocrine PNP, Washington
University/St. Louis Children's
Hospital, St. Louis, MO

Terri Lipman, PhD, CRNP, FAAN, ‎Assistant Dean for Community ‎Engagement, University of ‎Pennsylvania, Philadelphia, PA
9:15 a.m. - 10:15 a.m.
1.0 Contact Hour*
Diabetes, Basic

What Is the Impact of COVID-19 on the Incidence and Trajectory of ‎Diabetes in Children?‎
Over 5.7 million children have tested positive for COVID19 since the start ‎of the pandemic.  Will this increase the incidence of diabetes?  Will ‎children with pre-existing diabetes, who develop COVID have higher risk ‎of diabetes complications? How has the pandemic impacted your ‎practice?  This is a topic for all of us who have lived and practiced in an ‎unprecedented time.  This presentation will provide an opportunity to ‎review what is known, consider what is possible, and discuss the future ‎of pediatric endocrinology nursing.‎
Terri Lipman, PhD, CRNP, FAAN, ‎Assistant Dean for Community ‎Engagement, University of ‎Pennsylvania, Philadelphia, PA
10:15 a.m. - 10:45 a.m.

Refreshment Break
10:45 a.m. - 11:45 a.m.
1.0 Contact Hour*
Concurrent Session 2
Research
2A. Writing for Publication
This presentation will focus on the following objectives:‎
  • Discuss the knowledge and skills necessary for writing for ‎‎newsletters, journals, and other nursing related publications.‎
  • Identify a potential topic for publication based on your area of ‎‎clinical expertise.‎
  • Identify potential organizational resources within the work ‎‎setting that can be accessed to achieve your publication goal.‎
Maureen Dever, MSN, CRNP, CDCES, ‎Pediatric Nurse Practitioner, ‎Endocrinology and Diabetes, ‎Children’s Hospital of Philadelphia, ‎Philadelphia, PA

​​Diabetes, Advanced
2B. Use of Diabetes Devices in the Hospital Setting (Inpatient and ‎OR)‎
The presenters will provide tools and understanding of how patients with ‎diabetes using technology can be managed in the hospital. This panel will ‎include presenters from different practices and how they approach this ‎topic. Attendees will learn how they can advocate for patients to use ‎their medically necessary tools that promote optimal glycemic control in ‎the hospital.‎
​​Pantea Minnock, RN, CRNP, Nurse ‎Practitioner, Children’s Hospital of ‎Philadelphia, Philadelphia, PA; ‎Michelle Marowitz, RN, CRNP, ‎Diabetes NP, Children’s Hospital of ‎Philadelphia, Philadelphia, PA; Other ‎panelists TBD
11:45 a.m. - 1:15 p.m. ​Membership Meeting & Awards Luncheon

1:15 p.m. - 2:15 p.m.
1.0 Contact Hour*
Concurrent Session 3
Diabetes/Endocrine, Advanced‎
3A. Mystery of Hyperglycemia…”What Type of Diabetes Does My ‎Child Have?”: Understanding the Care of Children with Atypical ‎Diabetes
The presenter will provide an overview of McCune Albright Syndrome. ‎Since MAS is a rare disease, it is important to be knowledgeable about ‎this disease and its management, as any given practice is likely to ‎encounter at least a few patients (perhaps more!) with this disease. ‎

Michelle Marowitz, CRNP, Diabetes, ‎NP, Children’s Hospital of ‎Philadelphia, Philadelphia, PA; ‎Pantea Minnock, RN, CRNP, Nurse ‎Practitioner, Children’s Hospital of ‎Philadelphia, Philadelphia, PA
Endocrine, Advanced
3B. Precocious Puberty: 2022 
Dr. Shulman will provide an overview of early puberty, diagnosis, and management. 

Dorothy I. Shulman, MD, Professor, Pediatric Endocrinology, USF Diabetes and Endocrinology Center, University of South Florida, Tampa, FL


​​2:20 p.m. - 3:20 p.m.
1.0 Contact Hour*
Concurrent Session 4
Pharmacology, Advanced
​‎4A. Thyroid 101, and its role in Childhood Growth and Development
The presenter will review the function of the thyroid gland, and its role in childhood growth and development. Discuss interpretation of lab results related to the thyroid. Review common conditions, including congenital hypothyroidism, acquired hypothyroidism and hyperthyroidism. The pathophysiology of these conditions, treatment and management. Present examples of clinical cases, to help facilitate understanding of the various clinical presentations. .‎
Jennifer Seekford, MSN, APRN, CPNP, Pediatric Nurse Practitioner, Endocrinology, Nemours Children’s Hospital Florida, Department of Endocrinology
Diabetes, Advanced
​‎4B: Got Frequent Flyers? Earn Extra Miles on an Approach to ‎Decrease Landing in the Hospital and Descent toward the A1C Goal
The presenters will discuss their clinic, which was formed initially to ‎decrease readmission rates for our patients with diabetes.  It now is also ‎a place to refer those struggling to decrease their A1Cs.  This clinic ‎consists of a multidisciplinary team including endo provider, nurse ‎educator, social work, clinical pharmacist, psychologist, and dietician.  ‎The presenters will provide preliminary data on how this clinic is doing in ‎its goal to reduce readmissions and A1Cs.‎
Cheryl Switzer, RN, MSN, CPNP, ‎CDCES, Nurse Practitioner, Cleveland ‎Clinic Children’s, Cleveland, OH; ‎Hannah Pratt, PharmD, BCPS
3:20 p.m. - 4:00​ p.m.
Refreshment Break
4:00 p.m. - 5:00​ p.m.
1.0 Contact Hour*
​Concurrent Session 5
Endocrine, Advanced
5A. Abnormal Uterine Bleeding during Puberty Induction in Turner ‎Syndrome: Clinical Management and Educational Pearls

Turner syndrome (TS) is the most common sex chromosome disorder in ‎females. Individuals with TS commonly have ovarian failure, leading to ‎absence of puberty and menstruation. They need estrogen/progestin ‎therapy to induce puberty and maintain the secondary sexual ‎characteristics. Endocrine providers often deal with TS patients in the ‎clinic setting. Prescribing estrogens to induce puberty can be associated ‎with abnormal uterine bleeding (AUB), especially with the use of (low-‎dose) transdermal estrogens. In their different roles, both advance nurse ‎practitioners and endocrine nurses will, at some point, encounter TS ‎patients with AUB. Using the clinical experience of the TS team at ‎Cincinnati Children’s Hospital, which follows a very large population of TS ‎patients, together with data from a recently completed research project, ‎and illustrated further by case presentations, the speakers intend to ‎inform the audience on the diagnosis, management and educational ‎aspects related to AUB in TS individuals. The nurse-coordinator will ‎address the counseling issues and provide the nursing perspective on ‎how to deal with the testing/procedures these patients may need, and ‎how    follow-up should be addressed. The MD presenter will review ‎recently obtained data on the risk factors associated with AUB and how ‎to address AUB therapeutically. The presentation will therefore combine ‎clinic experience, with research data, as well as provide practice ‎recommendations based on recently developed consensus guidelines.    ‎With the increased use of the newer transdermal estrogen preparations, ‎while the optimal replacement regimen has not been defined yet, this ‎presentation will be very helpful for all health care personnel interacting ‎with these patients as they present with AUB.     ‎

Lori Casnellie, RN, Coordinator, ‎Cincinnati Center for Turner ‎Syndrome Care, Cincinnati ‎Children’s Hospital Medical Center, ‎Cincinnati, OH; Philippe Backeljauw, ‎MD, Professor of Pediatrics, ‎University of Cincinnati College of ‎Medicine, Cincinnati, OH‎












Diabetes, Advanced
5B. Taming Diabetes Software: How We Leveraged to Solve Our ‎Multi-Login Woes

We found ourselves with over 20 different logins to various data ‎management software.  Some reports showed the glucose level on the X-‎axis and some on the Y.  Others were organized by day of the week.  And ‎where was the modal view!? It was just too much.  We eventually ‎concluded that a medical error was inevitable if something didn’t change. ‎We needed a single platform to streamline our tech-centric diabetes ‎center, compatible with most diabetes equipment used by our patients, ‎and graphically structured in such a way that we could not only easily ‎interpret patient data on the fly but also promote patient autonomy ‎when it comes to organizing, interpreting and managing their own ‎diabetes data. We found the solution!‎

Jessica Adkins, DNP, CNS, RN, CPNP-‎PC, BC-ADM, Co-Owner, Everyday ‎Diabetes Center, Co-Founder, T1D ‎Revolution; Kris Britt, BSN, RN, CDE, ‎CPT, Co-Owner, Everyday Diabetes ‎Center, Co-Founder, T1D Revolution

7:00 p.m. - 10:00 p.m. Evening Event by Novo Nordisk
                                                                        

Saturday, May 21, 2022
​Time Presentation/Event​ Presenter(s)
7:45 a.m. - 8:30 a.m.
Breakfast & Committee Meetings
8:30 a.m. - 9:30 a.m.​
1.0 Contact Hour*
Professional Development
​The Nurse Effect: Joy, Compassion, Empathic Concern, and ‎Renewal
The Nurse Effect is an interactive session about being a nurse.  We will ‎explore your nurse beginning, celebrations, and obstacles.  Compassion ‎fatigue will be explored, as well as self-care strategies to transform. ‎Participants will discuss ambiguous loss of one social barrier in providing ‎care, both individually and collectively.‎
Shari Liesch, BSN, APNP, Medical ‎College of Wisconsin, Children’s ‎Hospital of Wisconsin Fox Valley, ‎Neenah, WI




9:30 a.m. - 10:30 a.m.​
1.0 Contact Hour*
Diabetes, Basic
Life with Diabetes: Transition from Home to College and Beyond
Moving on to college whether living in a dorm, apartment, or commuting ‎from home poses a major adjustment in the life of our patients with T1D.  ‎Our diabetes team created an interactive program to bridge the ‎knowledge gap and assist our patients with T1D during this difficult ‎transition. We will share our education topics, funny stories, and student ‎handouts that we have created to encourage student participation as ‎they develop more independence with their diabetes management. ‎COVID made everything in our clinic more difficult.  We will share some ‎of the creative ways we interacted with our high school seniors, when ‎the pandemic tried to bring us down.‎
Maria Borri, BSN, RN, CDCES, Nurse ‎Specialist, Beaumont Children’s, ‎Royal Oak, MI; Emily Falk, BSN, RN, ‎CDCES, CPN
10:30 a.m. - 10:45 a.m. ​Break                             
10:45 a.m. - 11:45 a.m.
1.0 Contact Hour*
Pharmacology, Advanced
Insulin Update: New Names, New Action, New Indications - What’s ‎Out There for Our Patients
This presentation will describe the different types of insulin available on ‎the market and discuss use and prescribing practices. Most pediatric ‎endocrine nurses teach use and prescribe insulin every day. Figuring out ‎what is available, what is approved for use in pediatrics, and what can be ‎covered by insurance is tricky. This presentation will include a summary ‎of each type of insulin and the information that pediatric nurses and ‎practitioners need to help patients to use it most effectively.‎
Melissa Rearson, CRNP, Pediatric ‎Nurse Practitioner, Children’s ‎Hospital of Philadelphia, ‎Philadelphia, PA‎
​11:45 a.m. - 12:00 p.m. ​Closing RemarksRebecca Crespi, BA, RN, MSN, CPNP, ‎CDCES, PENS President
* Subject to change based upon approval 
Total number of contact hours applied for is 17.25.